McKay's in the hospital

I just wanted to write a little something quick before I head off to sleep. Saturday around 2:00 McKay had a grand maul seizure. He has never had one of these before. but yes he does have seizures quite often. They only last 3-4 seconds though. This one lasted a total of 45 minutes. It started right here in our living room. I was sitting right next to him when it started, and lasted the whole way to Primary Children's Hospital and did not stop until they gave him a drug called Adivan. I can honestly say that this was the scariest thing we've gone through yet with little McKay. We wondered maybe if this was going to be it for McKay. It hit me really strong when I walked into his room there in the Emergency room and saw McKay shaking on the table with wires and cords all over him. But once again he has pulled through and he's feeling much better. He is still in the hospital and most likely will be there for a couple more days. He is still very lethargic and very out of it. They say that after a seizure one can be very tired and will sleep for a long time. so.... they won't send him home till he's more his normal self again. They really don't know why this happened, so we still have no real answers. They are putting him back on another medication for seizures and want to make sure he tolerates it okay. So anyway.... that's a little update. Other than that all is well- John stays the night with McKay and I stay here with the little one's. I go up for part of the day. My goal is to just keep up with everything! I just can't believe Christmas is in a week. so Just know..... If you don't get a Christmas card here soon..... Well, just know we love you! Here's one thing I've learned through all of this. It seems that almost every year of McKay's life we have spent some time at Primary children's in some way or another. It's there that I learn what's most important in life. Life is so precious. Christmas will come and go. Just take a deep breath and enjoy the small moments of life.

Some Little Adventures

On Wednesday our big adventure for the day was Story Hour at Barnes and Noble. This was Tyler's first story time ever. Every Wednesday at 11:00 they have someone who reads a few books, an activity like coloring a picture or something crafty and a little snack. Way cute! 6 friends from the neighborhood went. These kids are my friend Jamie's. the 4 week old Amelia and Rylee who is 20 months. Hannah's new favorite thing to do is hold little Tyler.....yea, I said little....J.K....He's as big as they are!

On Tuesday We headed up to Primary Childrens Hospital. McKay was having a hearing test done under anesthesia. The test showed that his left ear hears better than his right. They said that his ears and middle ears are not to bad. where he really has problems is the connection to the brain. Which that was only expected due to his sever brain loss. They said just keep talking to him and pretending that he can hear everything because you never know when it will click. He came out of the anesthesia after a while. He was quite drowsy the rest of the day though. Hannah played at her friend Rylee's for the day, so I only had Tyler. (Thank goodness!)

For FHE we went to Tremonton to visit g-ma Bernie and g-pa Emerson Earl. We had a great time. It was Matthew's turn to do the lesson and he did a great one on Christmas and being thankful. We ate pizza and Bernie's famous dessert. Chocolate and vanilla pudding mixture with graham cracker crumbs on bottom and top. so delicious!!

Now we don't see this very often....my big teddy bear cousin Taylor holding little Tyler.
But when it happens I have to capture the moment!

this here is a great picture of my cousin Dana dancing with my Uncle Clair

Sunday dinner at my Uncle Alan and Aunt Geri's home in Smithfield. John is feeding McKay and showing some of my cousins kids how to feed McKay. They all love to watch. They all are so cute to McKay and ask the sweetest questions.

Tyler is 3 months old

Our little baby is not a little baby any more! I can't believe he's all ready 3 months old. I would have to say that the last month has been really fun getting to know Tyler. He's really starting to get a personality! when He makes eye contact with one of us he'll just grin. He is very ticklish.... he will laugh so hard. The other day I was holding him in my lap and he looked up at me and just started laughing. I'm not so sure what was so funny but it was so cute!

I was in the kitchen cooking when I looked down and saw this! His first time ever grabbing for the toys that are hanging down.

Temple Square Lights

The highlight of the Last three weeks was having my uncle Clair (my mother's brother) and my Aunt Faye visiting form Indiana. and for the few days around the holiday having Cheyenne there too. We usually get to see them once a year. They are such neat people. We love them so much. It was so fun to see you.... we all ready miss you!

Here's a group picture of everyone on my side of the family that came. After we watched "the Savior of the world" we went to dinner and then back to Temple Square to see the lights.

Carlie, Riley, Hannah and John.

Matthew and Hannah thought the lights were way cool! Here's a picture of the four of us. Because of the cold we left McKay and Tyler home with a sitter- Katie Cammack. Thanks again Katie for helping out with the kids. Your Awesome!

This is my mother's friend Nathan Haws and his beautiful family. Such neat people! together we all went to dinner and to Temple square.

Thanksgiving Festivities

This is my cousin Brock with Matthew. The Saturday after Thanksgiving we headed to Temple square to see "The Savior of the World". You had to be 8 and older to go...so this was a big thing for him to attend. We all really liked it. It was a great way to start the Christmas season with.

Cheyenne is going to be one good mother some day! by the way guys.... she's single! She is attending BYU right now and I'll tell you what.... she is Awesome!

This is a cute picture of my sister Tara and Eli

Hannah, Matthew and Cheyenne waiting patiently for the feasting to begin!

We went to my G-ma Leah's home in Smithfield for Thanksgiving Dinner. This is G-ma Leah holding Tyler and my cousin Cheyenne.

Tyler Kenneth Roe is Blessed

John blessed Tyler on Nov. 4th. It turned out to be such a good day. We felt very blessed for the love and support from both sides of the family. I love blessing days because it makes you stop and focus on what really matters. One of the neatest things that happened that day was the unexpected arrival of John's younger brother Jim. Last we heard was Jim was out of town and so his wife Kara and little Daniel would be coming alone. Well, when we pulled up to the church there he was. talk about surprise! He drove all through the night just so he could make it. Your an awesome brother Jim!!

This Is my cute Mom Linnea with Tyler. The kids love grandma so much.

Tyler was so happy the whole day. While everyone was eating I laid him on the floor
and took these pictures.

After Tyler's blessing we had a luncheon at Aunt Cindi's house. Her house was warm and welcoming as always. We had some good food and some good visiting time. Thanks again Cindi!

Taking Pictures - What An Adventure

In October, Aunt Cindi took some family pictures for us at Layton Park. We think she did an awesome job. For it was no easy task! I'm sure at first glance at these pictures it looks like everything went smooth and easy, well looks can be deceiving! Every time we've had family pictures things are a little crazy. This time takes the cake! We've never had quite the experience like we did this day. It all started out when we were loading the van. John was holding McKay in his lap because he was acting as though he had an upset stomach. We've found that if you hold him it makes it go away quicker. all of a sudden his feeding tube button opened up and started leaking all over. It mostly got all over John.... so there went John's outfit. (We had to go to Target to get him new jeans.) Next, There we all are sitting in the van..... and it won't start! So we jumped it and eventually drove off. As we're driving over to the park John says, "For this to get any better, we just need McKay to have a blowout!" Guess what?! He did. I'm sorry this is so gross but its the truth.... and If I have to live through this, It won't hurt you to hear about it!! JK! It was everywhere. It took us a good 1/2 hour to clean it up. So once we got our act together we took a deep breath and started taking pictures. So after all of that, this is what we got. It was all worth it right! Conclusion.... Nobody ever said it would be easy, but everybody knows it's worth it.

Brothers

My two little boys

McKay and Tyler

A month ago I was taking all these pictures of Tyler and the kids and Posting them on our family web-site so that all the family could see little Tyler. (especially so that his grandpa Ken and grandma Judi Roe who are on a mission at the Washington DC visitor center could see them) as I was sending all these pictures Ken said that Maybe McKay would like to hold Tyler. And I thought about that for a second.... and thought... oh maybe he does. I didn't even think about it. I think trying to keep up with four kids and everything that comes with motherhood I just didn't even think about it. So the next chance I could I took this picture. I had to stand next to him because he would slide off if we weren't careful. So then I really got thinking. Even though McKay is 7, and Tyler was only 5 weeks..... it was as though I had twins. Developmentally McKay is only 0-1 month. He's my big baby and Tyler is my little baby! There still is a little difference though. Tyler cries when he is hungry. McKay does not cry when he is hungry. Tyler's eyes can track objects when McKay's eyes cannot. They both can tell me when their uncomfortable in different ways. Tyler will cry. McKay will squirm around in his seat, fling his arms around and move his legs up and down, and by the look on his face you can tell he's not happy. I just look at the two and it amazes me. What are they both thinking. are they thinking anything....... I know their thinking something.....I only wish I knew what.

Today Hannah had dance class. It's her favorite hour of the week! She likes to wear her dress ups to class. Right now she is working on mastering her "shuffle ball change". It cracks me up just watching her--- she tries so hard!

Tyler Kenneth Roe
Aug. 28, 2007
9 lbs. 1 oz.
21 in.

This is Hannah holding Tyler. She is my little helper. She'll be four the day after Christmas.

TYLER'S FIRST BATH

So I have to tell you..... This blogging thing is kind of addicting. I coudn't resist it any longer and decided to start our own. It might take me a while to figure things out ! But I am excited to join all you fun bloggers!!

These last few months with Tyler in the home we've taken some fun pictures. The ones that I'm going to post now are back when he was a week old.

Welcome to the Family Tyler!

Tyler was born August 28,2007. We are so excited to have him in our family. It is so fun to have another baby in the house again. We are so happy to have him in the home. All is going well!